Wednesday, September 2, 2009

My Latest Photography Adventure

Click to play this Smilebox slideshow: Birth of a Cicada
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Maggie and Me

I love pears!
I told Maggie I would post an update. The vet weighed her on Saturday and she weighed 24 lbs. One month ago she weighed 10.5 lbs. She got a clean bill of health.
Now on to me. I had a lousy month in August. Much more pain than usual and the fatigue was almost unbearable. I have started having some worsening vision problems and hope to see the opthamologist in the very near future.
I love Maggie so much and she brings me so much love, joy and pleasure. I had forgotten what potty training entailed and the energy I would need to keep up with her. I take her out on a leash and walk her much more than I am used to walking and she is very strong. I am trying to teach her basic skills such as to walk on my right side only to prevent me from falling. Wow the energy this takes. We will get through this. LOL
I forgot to mention my sleeping pattern has also been disrupted since her arrival. She seems to think I should be out of bed by 6am - 7am. She jumps in bed and tries to root me out of bed by digging and digging under my body. Needless to say I am up earlier than I am accustomed. I didn't realize how a change in my sleep pattern would affect me. Please wish me luck with this endeavor
September isn't off to a great start as all the symptoms have followed me into the new month.
I have faith it will get better.

30 Things About My Invisible Illness You May Not Know

1. The illness I live with is: MS, CFS

2. I was diagnosed with it in the year: 2000

3. But I had symptoms since: years prior

4. The biggest adjustment I’ve had to make is: Had to stop driving & dependent on husband.

5. Most people assume: I feel ok.

6. The hardest part about mornings are: Pain, stiffness

7. My favorite medical TV show is: Nonfiction medical shows

8. A gadget I couldn’t live without is: tub bench and detachable shower head

9. The hardest part about nights are: Getting comfortable related to pain

10. Each day I take _16_ pills & vitamins. (No comments, please)

11. Regarding alternative treatments I: Not covered by insurance

12. If I had to choose between an invisible illness or visible I would choose: invisible

13. Regarding working and career: I do not enjoy being unable to work.

14. People would be surprised to know: How sad I am because of my cognitive deficits.

15. The hardest thing to accept about my new reality has been: Lack of emotional support by my adult children.

16. Something I never thought I could do with my illness that I did was: Still be a fun Nanni

17. The commercials about my illness: Don't depict reality fully.

18. Something I really miss doing since I was diagnosed is: working

19. It was really hard to have to give up: career & driving

20. A new hobby I have taken up since my diagnosis is: photography

21. If I could have one day of feeling normal again I would: Play with my 8yr. old granddaughter in a way she hasn't seen me before.

22. My illness has taught me: I have much to live for.

23. Want to know a secret? One thing people say that gets under my skin is: "You look good"

24. But I love it when people: Make me laugh.

25. My favorite motto, scripture, quote that gets me through tough times is: God grant me the serenity to accept the things I cannot change, courage to change the things I can, and the wisdom to know the difference.-- Reinhold Niebuhr

26. When someone is diagnosed I’d like to tell them: You are still the same person in your soul.

27. Something that has surprised me about living with an illness is: Tremendous financial burdens & stress

28. The nicest thing someone did for me when I wasn’t feeling well was: Bathe me. My husband is a blessing.

29. I’m involved with Invisible Illness Week because: Dedicated to the education of others to make our lives better.

30. The fact that you read this list makes me feel: Hopeful


Find out more about National Invisible Chronic Illness Awareness Week and the 5-day free virtual conference with 20 speakers Sept 14-18, 2009 at http://www.invisibleillness.com/