Friday, September 25, 2009
I live in a rural area where it is mostly crop farming; corn, soybeans, winter wheat. The other day I was walking the puppy and it was very windy. It is almost harvest time so the corn is very dry and for the first time in my life I noticed the music of the corn blowing and rubbing against one another in the wind. It was a beautiful sound. It seems illness & disability can open our senses to all the things we used to miss or ignore.
Tuesday, September 22, 2009
We also went, at my urging, to a hot air balloon derby that is held annually in a town near us. All my years of living here and I had never gone. I decided I wanted to go and take some pictures. My hubby wasn't ecstatic about the idea but I really wanted to go. Reluctantly he drove me to the launch site. I would love to go up in a balloon someday. Years ago I wanted to skydive but now I will settle for a ride in a hot air balloon. We watched one group of balloons launch and another come from another site and land. As it turns out hubby enjoyed himself. I wish the pictures were better but I did get a few good shots I think. I hope you enjoy them too. I had a great time taking them. Yes, my neck was killing me later after maintaining the position it took to get the shots. It was worth it though.
Wednesday, September 2, 2009
1. The illness I live with is: MS, CFS
2. I was diagnosed with it in the year: 2000
3. But I had symptoms since: years prior
4. The biggest adjustment I’ve had to make is: Had to stop driving & dependent on husband.
5. Most people assume: I feel ok.
6. The hardest part about mornings are: Pain, stiffness
7. My favorite medical TV show is: Nonfiction medical shows
8. A gadget I couldn’t live without is: tub bench and detachable shower head
9. The hardest part about nights are: Getting comfortable related to pain
10. Each day I take _16_ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: Not covered by insurance
12. If I had to choose between an invisible illness or visible I would choose: invisible
13. Regarding working and career: I do not enjoy being unable to work.
14. People would be surprised to know: How sad I am because of my cognitive deficits.
15. The hardest thing to accept about my new reality has been: Lack of emotional support by my adult children.
16. Something I never thought I could do with my illness that I did was: Still be a fun Nanni
17. The commercials about my illness: Don't depict reality fully.
18. Something I really miss doing since I was diagnosed is: working
19. It was really hard to have to give up: career & driving
20. A new hobby I have taken up since my diagnosis is: photography
21. If I could have one day of feeling normal again I would: Play with my 8yr. old granddaughter in a way she hasn't seen me before.
22. My illness has taught me: I have much to live for.
23. Want to know a secret? One thing people say that gets under my skin is: "You look good"
24. But I love it when people: Make me laugh.
25. My favorite motto, scripture, quote that gets me through tough times is: God grant me the serenity to accept the things I cannot change, courage to change the things I can, and the wisdom to know the difference.-- Reinhold Niebuhr
26. When someone is diagnosed I’d like to tell them: You are still the same person in your soul.
27. Something that has surprised me about living with an illness is: Tremendous financial burdens & stress
28. The nicest thing someone did for me when I wasn’t feeling well was: Bathe me. My husband is a blessing.
29. I’m involved with Invisible Illness Week because: Dedicated to the education of others to make our lives better.
30. The fact that you read this list makes me feel: Hopeful
Find out more about National Invisible Chronic Illness Awareness Week and the 5-day free virtual conference with 20 speakers Sept 14-18, 2009 at http://www.invisibleillness.com/